Tag: Facebook groups

Why Do Some Parents Refuse the Newborn Screening Test?

Why do some parents refuse the newborn screening test when their baby is born?

Do parents skip testing just because the newborn screening test might be painful?
Is it just that the newborn screening test might be painful?

The usual suspects…

Why Do Some Parents Refuse the Newborn Screening Test?

And they are getting advice to skip in the same Facebook groups that tell them to skip their baby’s hepatitis B vaccine and vitamin K shot.

But why skip the newborn screen test, after all, it isn’t a shot of any kind?

Home births are less likely to have newborn screening tests.

Mostly these parents are scared into thinking that something bad will be done with their baby’s blood.

Something beyond testing it for up to 50 or more life-threatening diseases that are often treatable when detected early, which is why newborn screening tests are a thing.

Although blood spots from newborn screening tests are sometimes stored, most folks don't understand why. Genetic manipulation?
Although blood spots from newborn screening tests are sometimes stored, most folks don’t understand why. Genetic manipulation?

While it is true that some states continue to store blood spots from the newborn screening tests for some time, it is mainly to allow retests, forensic studies, and for research on new tests and new technology.

“Many parents don’t realize their baby’s DNA is being stored in a government lab, but sometimes when they find out, as the Browns did, they take action.”

Elizabeth Cohen on The government has your baby’s DNA

And it isn’t a secret.

“Newborn screening programs vary widely in approaches and policies concerning residual dried blood spot samples (DBS) collected for newborn screening. Recognition of the epidemiological utility of DBS samples for HIV seroprevalence surveys and a growing interest in DBSs for DNA analysis has intensified consideration of issues regarding retention, storage, and use of residual DBS samples. Potentially these samples provide a genetic material “bank” for all newborns nationwide. Their value as a resource for other uses has already been recognized by scientists, administrators, and judicial officials. Programs should promulgate rules for retention and use of residual newborn screening DBS samples based on scientifically valid information. Banking of newborn samples as sources of genetic material should be considered in light of potential benefit or harm to society.”

Guidelines for the Retention, Storage, and Use of Residual Dried Blood Spot Samples after Newborn Screening Analysis:Statement of the Council of Regional Networks for Genetic Services (1996)

Experts began developing guidelines nearly 25 years ago to address the ethical concerns associated with newborn DNA banking.

“In fact, under the recently revised Newborn Screening Saves Lives Reauthorization Act of 2014, federally funded DBS research is considered human subject research that requires parental consent. Newborn screening programs are now tasked with implementing informed consent strategies for use and storage of their states’ DBS if they are being used for federally funded research.”

Kelly et al on Screening of Newborns for Disorders with High Benefit-Risk Ratios Should Be Mandatory

So should you opt out of the newborn screening test because you are scared of newborn DNA banking?

“Once screening in the State laboratory is complete, residual dried blood spot samples that are no longer needed for testing are each assigned a unique code which assures privacy and confidentiality for the sample and its donor.”

Michigan Neonatal Biobank

Opting out means your baby won’t be tested for treatable conditions, like homocystinuria, classic phenylketonuria, severe combined immunodeficiencies, galactosemia, congenital adrenal hyperplasia, and primary congenital hypothyroidism, etc.

“Newborn screening of the blood spot consists of a series of tests to look for 53 diseases that can cause a baby to get really sick or die if they are not identified and treated early. The diseases can cause growth problems, mental or physical delays, deafness, blindness, seizures, and early death. Most babies with these conditions look perfectly normal when they are born, and problems may not appear for several weeks or months. About 1 child out of every 500 screened has one of these newborn screening conditions.”

Can parents opt out of having their newborn screened?

It is estimated that the lives of more than 12,000 babies are saved or improved each year in the United States because their conditions are detected through newborn screening.

Newborn screening tests for homocystinuria, the thing that you should actually be worried about if you have an MTHFR gene mutation.
Newborn screening tests for homocystinuria, the thing that you should actually be worried about if you have an MTHFR gene mutation.

But mostly understand that all of these risks you take when you skip standard care add up – skipping your Tdap shot during pregnancy and your baby’s vitamin K shot, eye ointment, hepatitis B vaccine, and newborn screening tests, etc.

“While screening programs are now universal in the United States, it is estimated that approximately 1‐2 percent of births are not screened either because of parental refusal or practitioner oversight or omission. For every 1 percent of newborns not screened in the United States, approximately 45‐50 infants will be missed each year.”

Parent Refusal to Have an Infant Screened

And we see the tragic results.

“Federal and state public health agencies, in partnership with health professionals, families, and representatives of ethnic, minority, and other diverse communities, should develop model legislation and/or regulation that articulates policies and procedures regarding use of unlinked and identifiable residual samples for research and public health surveillance (this process should include review and consideration of the recent recommendations to the President set forth by the National Bioethics Advisory Commission for research involving human biological materials); develop model consent forms and informational materials for parental permission for retention and use of newborn screening samples; develop educational materials for parents that include information regarding the storage and uses of residual samples; organize collaborative efforts to develop minimal standards for storage and database technology to facilitate appropriate storage of residual newborn screening blood samples at the state level; consider creating a national or multistate population-based specimen resource for research in which consent is obtained from the individuals from whom the tissue is obtained; such a resource could be an alternative to retaining newborn screening samples for potential use in research.”

American Academy of Pediatrics Newborn Screening Task Force recommendations: how far have we come?

If you are concerned, work to make sure that states continue their efforts to make sure newborn screening samples are handled appropriately, especially if they are stored, but don’t put your baby’s health at risk by skipping or delaying their newborn screen test.

More on Refusing Newborn Screen Tests

Product Tampering to Spread Propaganda About Vaccines

Have you heard about the folks placing propaganda about vaccines inside baby products?

Tampering with baby formula to spread misinformation about vaccines. This is the modern anti-vaccine movement.
Tampering with baby formula to spread misinformation about vaccines. This is the modern anti-vaccine movement.

Yes, that’s really thing…

Product Tampering to Spread Propaganda About Vaccines

And it isn’t isolated.

There are Facebook groups that sell cards with misinformation about vaccines and folks are encouraged to spread them around.

It's not a coincidence that these folks would go so far as to tamper with baby products to spread their misinformation.
It’s not a coincidence that these folks would go so far as to tamper with baby products to spread their misinformation.

Why are they doing it?

Tampering with a product is a crime. Learn the Risk
Tampering with these products is a crime. Learn the Risk

They are planting seeds spreading propaganda about vaccines.

Misinformation about vaccines does not give you informed consent...
Misinformation about vaccines does not give you informed consent…

They are going into stores and tampering with products, from baby formula and diapers to clothing.

You now have another job - protecting your family from propaganda about vaccines.
You now have another job – protecting your family from propaganda about vaccines.

Especially clothing for babies.

Who’s tampering with these products?

Is it really so hard to figure out?

Posting videos of your tampering with baby products on TikTok is a little bit suspicious...
Posting videos of your tampering with baby products on TikTok is a little bit suspicious…

Especially when they provide their own evidence on Facebook and TikTok…

The real question is when are these stores going to stop them?

More On Techniques to Spread Propaganda About Vaccines

How Can They Make a Vaccine for a Bacteria?

Why do some folks think that you can’t make a vaccine for a bacteria?

How can they make a vaccine for a bacteria?
You have done everything you can to keep her healthy by not vaccinating but sometimes things still happen, like your baby gets a vaccine-preventable disease???

Probably because they spend too much time in anti-vax Facebook groups…

How Can They Make a Vaccine for a Bacteria?

Hopefully most people do know that there are plenty of vaccines for bacteria, from tetanus to tuberculosis and typhoid fever.

Essential oils do not help kids with meningitis.
Essential oils do not help kids with meningitis.

And that several of those vaccines can help prevent children, including infants, from getting meningitis.

Vaccines that prevent bacterial meningitis include:

  • Hib – the Haemophilus influenzae type b bacteria was a common cause of meningitis in the pre-vaccine era
  • Prevnar – the Streptococcus pneumoniae bacteria can cause meningitis
  • Menactra and Menveo – protect against serogroup A, C, W, Y meningococcal bacteria
  • Bexsero and Trumenba – protect against serogroup B meningococcal bacteria

Want to protect your kids from meningitis and help to keep them healthy?

Get them vaccinated.

More on Vaccines for Bacteria

Bobby Kennedy’s Big Pharma Vaccine Cartel Army

Does the Big Pharma Vaccine Cartel have an army of bloggers, surrogates, trolls, and bots?

Wait, what? The Big Pharma Vaccine Cartel???

Does anyone really believe this anti-vax conspiracy stuff?

Bobby Kennedy seems to think that there is a Big Pharma Vaccine Cartel Army of bloggers, surrogates, trolls, and bots that are after him because he criticizes vaccines.
Bobby Kennedy seems to think that there is a Big Pharma Vaccine Cartel Army of bloggers, surrogates, trolls, and bots that are after him because he criticizes vaccines. Can we really not talk about vaccines without folks pushing this kind of misinformation?

Oh, yeah, I guess they do…

Bobby Kennedy’s Big Pharma Vaccine Cartel Army

With all of those body guards and talk of a Big Pharma Vaccine Cartel army being after him, Bobby Kennedy must have had a lot of protestors at his speech, right?

Protestors who were blocking the entrances to the building, banging on the walls, holding up signs, throwing blood, etc.

Anti-vax protestors banged on the walls as they protested at the California capital.
Anti-vax protestors banged on the walls as they protested the passing of SB276 at the California capital.

Protestors who ended up getting arrested.

Anti-vax protestors followed California legislator Richard Pan to a meeting in Chicago.
Anti-vax protestors followed California legislator Richard Pan to a meeting in Chicago.

Do Bobby Kennedy‘s Big Pharma Vaccine Cartel army follow him around the country?

Protestors cornered a state Senator in a room of the Capital.
Protestors cornered a state Senator in a room of the Capital.

Did the protestors corner him in a room while he was working?

Who needs a body guard???
Who needs a body guard???

Oh wait, no.

None of that happens to Bobby Kennedy when he gives a speech.

"Who should we really be targeting? Merck. Why won't they put their gun on the person who is causing the problem? It's not the most vulnerable people, it's this greedy, homicidal vaccine company. When I say homicidal, I'm not exaggerating." - Bobby Kennedy
“Who should we really be targeting? Merck. Why won’t they put their gun on the person who is causing the problem? It’s not the most vulnerable people, it’s this greedy, homicidal vaccine company. When I say homicidal, I’m not exaggerating.” – Bobby Kennedy

That’s what has been happening at the anti-vaccine protests, where parents are protesting because they want to continue sending their intentionally unvaccinated kids to school, putting all of our kids at risk, especially those with true medical exemptions.

It makes you wonder if Kennedy has an Anti-Vax Cartel Army of bloggers, surrogates, trolls, and bots on Twitter, Instagram, and Facebook, etc. and so figures vaccine advocates must have one too…

Maybe they are the ones putting out all of the misinformation about vaccines these days…

Millions for giving vaccines... Do we get extra for being in the Big Pharma Vaccine Cartel army?
Millions for giving vaccines… Do we get extra for being in the Big Pharma Vaccine Cartel army?

Oh, and before I forget…

Did his bodyguards go to lunch???
Did his bodyguards go to lunch???

Can someone send me some pics of the Big Pharma Vaccine Cartel army who were protesting Kennedy during the keynote at the 13th annual Surrey Environment and Business Awards luncheon, hosted by the Surrey Board of Trade in Vancouver?

More on Bobby Kennedy and Vaccines