Tag: vaccine refuser

How Do You Provide Informed Consent to Vaccination?

When you take your child to their pediatrician, you expect to be given all of the information you need to help you make good decisions about their care.

Whether it is about an antibiotic to treat an ear infection, the need for an MRI if your child is having severe headaches, or weaning off an asthma medication, etc., you deserve to be well informed of the risks and benefits of any and all procedures they have.

How Do You Provide Informed Consent to Vaccination?

Of course, informed consent also applies to vaccinations.

It's not an "informed consent form," but the Vaccine Information Statement can help you get informed consent before getting vaccines.
It’s not an “informed consent form,” but the Vaccine Information Statement can help you get informed consent before getting vaccines.

How do you provide informed consent to vaccination?

  1. Provide the latest edition of the appropriate Vaccine Information Statement (VIS) before a vaccination is given. Although these aren’t actually “informed consent forms,” they are required to be given by federal law and because “cover both benefits and risks associated with vaccinations, they provide enough information that anyone reading them should be adequately informed”
  2. Give parents/guardians the chance to take the VIS home to review later.
  3. Answer any questions about the vaccine that their child is about to get.

Hopefully you always get informed consent before your child is vaccinated.

You should also get informed consent before skipping or delaying any of your child’s vaccines, as it risks their getting a life-threatening vaccine-preventable disease and puts others at risk, all without any extra benefit.

“At trial, the parent and physician both acknowledged that the vaccine was recommended, but the parent stated that the risk of death wasn’t mentioned during the discussion.”

Document ‘informed refusal’ just as you would informed consent

Believe it or not, a pediatrician in California was successfully sued after a parent refused to vaccinate their child with Prevnar and their infant died of pneumococcal sepsis, which the vaccine could have prevented.

Although they realized that their pediatrician had recommended the vaccine and they refused it, they claimed that they didn’t realize that their baby could die without it. He did…

Myths About Informed Consent and Vaccines

Not surprisingly, many folks get the idea of informed consent to vaccination wrong.

For one thing, unless it is required by state law, no one has to sign a consent form before getting vaccinated. Many pediatricians and clinics do have you sign that you received the VIS, although federal law does not require this signature.

And informed consent doesn’t come from reading a vaccine’s package insert, as the parts pushed by anti-vaccine folks are just things included from voluntary reports and have not actually been proven to be caused by the vaccine.

“Now that case one is settled, I can go back to being loud and proud about my belief that every single patient should receive complete informed consent prior to vaccinations. This two-year period of silence has been tough. I will not rest until every single family has been given access to full, complete, objective, and un-doctored information that makes every parent fully aware of the risks they accept if they don’t vaccinate their child, and all the risks they take if they do vaccinate their child. Period. And I will fight against mandatory vaccination laws until they are no more. When every single person on this planet has access to informed consent, and can make a free choice, I will then be able to say my work is done.”

Dr. Bob Sears

When Dr. Bob talks about vaccines, do you think he mentions the parents who skipped the Prevnar vaccine and then successfully sued their pediatrician for not warning them that their baby would die? 

Dr. Bob Sears actually reassured parents that measles wasn't deadly in developed countries, neglecting to mention the dozens of people who have died in outbreaks in Europe - another well-nourished population with lower vaccination rates than the U.S.
Dr. Bob Sears actually reassured parents that measles wasn’t deadly in developed countries, neglecting to mention the dozens of people who have died in outbreaks in Europe – another well-nourished population with lower vaccination rates than the U.S.

Overstating the side effects and risks of getting vaccinated, rarely or ever mentioning the benefits of vaccines, and underestimating the complications and risks of life-threatening vaccine-preventable diseases isn’t informed consent.

It is actually misinformed consent.

It is propaganda.

It is a tool that some folks use to scare you away from making the right decision to vaccinate and protect your kids.

Parents deserve informed consent about vaccines. Unfortunately, that’s not what they are getting from the modern anti-vaccine movement.

More on Providing Informed Consent to Vaccination

Immunization Education Agreement

Having disagreements about getting kids vaccinated and protected are not rare these days.

“Many parents have questions about their children’s vaccines, and answering their questions can help parents feel confident in choosing to immunize their child according to the CDC’s recommended immunization schedule.”

CDC on Talking to Parents about Vaccines

They never were though.

The anti-vaccine movement, concerns about the pain from the shots, and worry about side effects have been around for as long as there have been vaccines.

Options When You Disagree About Vaccines

So what should you do if you disagree with someone about vaccines and you don’t want to get your child vaccinated?

It depends on who it is.

For example, if the person you disagree with is your pediatrician, then simply arguing about it likely isn’t a good idea, on either side.

Most pediatricians understand that many vaccine-hesitant parents are simply scared because of things they read and see on the Internet and they want to help you get educated, see through the myths and misinformation that are out there, and eventually get caught up and vaccinated.

They understand that terminating the physician-patient relationship over vaccines truly is a last resort for “when a substantial level of distrust develops, significant differences in the philosophy of care emerge, or poor quality of communication persists.”

Immunization Education Agreement

So what can you do besides arguing?

Will you agree to get educated about vaccines?
Will you agree to get educated about vaccines using recommended and reliable sources of information?

Pediatricians and other health care providers can agree to get better educated about all of the different ways to talk to vaccine-hesitant parents.

And vaccine-hesitant parents can agree to get educated about vaccines and life-threatening vaccine-preventable diseases using books and websites that are recommended by their provider.

Reassure your pediatrician that you are not done talking about vaccines and agree to get educated about vaccines:

Immunization Education Agreement Form

Even if you think that you have already done enough research, do just a little more. And then talk to you pediatrician again. And again if you have to.

Vaccines are safe. Vaccines are necessary. Don’t let anyone scare you into thinking that they aren’t.

What to Know About the Immunization Agreement

Whether you find yourself on opposite sides about immunizations with a friend, your spouse, an ex, or your pediatrician, agree to get educated about vaccines using these recommended and reliable sources of information and then talk about it some more.

More on the Immunization Education Agreement

Who’s Who in the Anti-Vaccine Movement

No, this isn’t another article about Andy Wakefield or Jenny McCarthy.

Defining the Anti-Vaccine Movement

The great majority of people know that vaccine work and that they are safe and necessary.

And then there are the folks who don’t.

“The term movement as a description for vaccine deniers is also very misleading. A movement implies the image of a powerful, coordinated group, united by a shared collective identity.”

WHO on How to respond to vocal vaccine deniers in public

It is important to understand that this minority of people who do not believe in vaccines do not have uniform beliefs. Calling them a movement is simply for convenience, as a way to group them all together.

Who’s Who in the Anti-Vaccine Movement

So who are the different types of people that you might come across in various discussions about vaccines?

More importantly, why do you want to know?

You don’t want to think that everyone who questions the safety or efficacy of vaccines is totally anti-vaccine and is going to refuse some or all vaccines. Some of these parents really do just have questions, want to get educated, and may have just been scared by misinformation. On the other hand, others won’t change their minds no matter what new evidence you bring to the table or how long you talk.

“Although many may characterize all individuals who eschew vaccines as “anti-vaccine” or “vaccine deniers,” in reality there is a broad spectrum of individuals who choose not to have themselves or their children vaccinated.”

Tara C Smith on Vaccine Rejection and Hesitancy: A Review and Call to Action

However you characterize the groups, you will be much less frustrated when talking about vaccines if can quickly recognize if you are talking to someone who is:

  • a go along to get along immunization acceptor – this type of cautious acceptor understands and accepts that vaccines work and that they are safe and necessary, but still may have some doubts about one or more vaccines.
  • an immunization advocate – understands, accepts, and helps teach others that vaccines work and that they are safe and necessary.
  • a vaccine denier – someone who does not accept the process of vaccination while denying scientific evidence and employing rhetorical arguments to give the false appearance of legitimate debate. These are the vaccine rejectors who are “unyieldingly entrenched in their refusal to consider vaccine information.”
  • vaccine hesitant – usually a classic fence-sitter, who has doubts about whether vaccines are really safe or necessary or has simply been scared and influenced about something they read on the Internet. They may skip or delay some vaccines, but are typically willing to listen to why getting their child fully vaccinated is their best and safest option.
  • a vaccine refuser – doesn’t vaccinate their kids or themselves, but unlike the vaccine denier, probably doesn’t have very strong beliefs in conspiracy theories and may be willing to listen if you address their concerns about vaccines. They are also sometimes called the vaccine resistant. Often seem to put aside their beliefs against vaccines in special circumstances, like during outbreaks or other high risk situations.
  • a vaccine skeptic – this term is often misused, as classically, a vaccine skeptic would be defined as a person who has questions about vaccines, but then accepts that they are safe and necessary once they have examined all of the evidence. As a skeptic, they would also question all of the “science” of the anti-vaccine movement too, and would find it lacking. Folks who question vaccines, but then ignore all of the evidence that supports their safety and effectiveness are in denial – they are not vaccine skeptics.
  • a vocal vaccine denier – a vaccine denier who influences others, especially on the Internet.
  • one of the worrieds – often immunization acceptors who are still a little worried about vaccine side effects.

What about those who say that they are pro-safe vaccines or pro-choice about vaccines?

Don’t be fooled, these are simply anti-vaccine arguments of a vaccine denier or refuser.

Jenny McCarthy and Jim Carrey went on a mission to Green Our Vaccines in 2008.
Jenny McCarthy and Jim Carrey went on a mission to Green Our Vaccines in 2008. How would you classify them?

Still having trouble telling the groups apart?

Try asking the person you are talking to what would change their mind about vaccines.

Would new evidence work? Or would they dismiss any new evidence as being biased, just as they already dismiss all of the evidence that  so strongly supports that vaccines are safe and necessary?

It is important to identify who’s who, because while you will likely not change the mind of someone who is at the stage of being a vaccine denier, you have a much better chance to help the others get their kids vaccinated and protected.

What to Know About Defining the Anti-Vaccine Movement

The anti-vaccine movement includes a lot of different groups of people, from those who are simply hesitant because a friend or family member is scaring them on Facebook to the vocal vaccine denier, who probably wouldn’t even change their mind if they were bitten by a rabid dog.

More About Defining the Anti-Vaccine Movement