Tag: morals

The Moral Outrage of the Anti-Vaccine Movement

It doesn’t take much to outrage folks these days.

It seems like there is always someone, someplace that is outraged about something.

Ironically, the latest faux outrage comes from anti-vaccine folks.

The Moral Outrage of the Anti-Vaccine Movement

What do anti-vaccine folks have to be outraged about, besides the idea that they think we are forcing them to vaccinate and protect their kids against life-threatening vaccine-preventable diseases?

“Report this Doctor – Laughing At Injured is not acceptable”

Apparently, they think that a doctor was making fun of autistic kids during a flu shot clinic at a hospital:

T: So after this shot, am I going to be good at math, Z?

Z: You’re going to be really good, because you’re going to be fully autistic, instead of just partially….

Z: You know Tom, I’m wondering if we’ve just been hit with placebo, because I didn’t feel the needle, I didn’t feel the autism coming on. None of it.

This was similar to an unscripted routine Zdogg did last year:

Z: Thomas is getting autistic as we speak, because he is full of mercury right now.

T: I can do math now. It’s awesome.

Z: That’s right. He’s gonna go gamble on the strip and clean house.

In the videos, they also talk a lot about how the flu shot is a scam by the government to control our thoughts…

Are they making fun of autistic kids or adults?

“It was a dumb joke, probably in poor taste, but it didn’t occur to me at the time because it was a live show and we were trying to be funny.”

ZDogg

It wasn’t funny and I’m glad he took down the video, even if it was under pressure from hospital administration and not because he really wanted to.

Joking about vaccines causing autism is offensive and no one should be doing it, even if it is call out and making fun of the folks in the anti-vaccine movement who try and associate vaccines with autism and do actually hurt autistic families.

But did he mock the father of a child who died of SUDC, within a day of getting vaccinated? A father who was carrying a copy of JB Handley’s autism book, who claims that “there is no money in dead babies,” and who is banging on the studio window during his interview with Paul Offit?

No.

He is simply pointing out, and seemed a little excited, that he had anti-vaccine protesters at his studio for the first time.

At a screening for Vaxxed, Paul Thomas, MD, joked that kids with autism were brain damaged. And everyone laughed.
At a screening for Vaxxed, Paul Thomas, MD, joked that kids with autism were brain damaged. And everyone laughed.

But if anti-vaccine folks really feel outrage over this, why is it so selective?

Where is the outrage when the comments don’t come from someone who supports vaccines?

“I want to thank the warrior moms and dads. Those of you who have an autistic child, or a child who is otherwise damaged, you know the damage isn’t always clear-cut autism. Some times it is just some variation – your kids just not quite right.

That’s why I didn’t stand and say that I have an autistic child, because my kids, I tease them and say that they are brain damaged. Uh. Sorry son.”

Paul Thomas

I don’t remember any outrage over Paul Thomas’ comments or when Del Bigtree said “Eve is autistic, that’s right, otherwise, why would she have eaten the apple,” and made this statement on his show:

“When I go visit my grandma, why don’t I see any autistic people flapping in the corner of the room.”

Apparently, the idea of autistic adults doesn’t fit into their narrative that vaccines are associated with autism.

But that isn’t even the worse thing Del has been recorded as saying…

“But I would think when you have a child with autism, you know, or on the spectrum, you have no reference point. You have no…

I don’t want this to sound wrong, but it’s a little bit more like having a dog or a Doberman or something that you don’t understand how it thinks, you don’t know. I mean, I mean a better figure than animal reference except… you don’t have their brain.

Or you hear about stories of people that bring home of exotic you know of chimpanzee or something where they can’t, and this is not sounding right.”

At least he didn’t want it to sound wrong…

“They get the shot. That night they have a fever of 103. They go to sleep, and three months later their brain is gone. This is a holocaust, what this is doing to our country.”

Robert F. Kennedy, Jr

The anti-vaccine world is full of talk of autistic kids being broken and damaged, they push dangerous and expensive “cures” on parents, and spread propaganda to scare parents away from vaccinating and protecting their kids.

Dr. Jerry is a pediatrician who practices Translational Medicine and wrote the forward to Jenny McCarthy's autism book.
Dr. Jerry is a pediatrician who practices Translational Medicine and wrote the forward to Jenny McCarthy’s autism book.

And they hijack every disease, story, and tragedy to make folks think that everything is a vaccine injury.

As a physician, I assure you this story isn’t believable at any level. In my opinion, the “health officials” are conjuring meningitis fairy tales about an “unvaccinated” boogeyman to cover for the much more probable cause of this child’s death: VACCINES.

The much more likely cause is right in front of us: “The child had just received his 4-month-old vaccinations two days beforehand.”

Jim Meehan

Jim Meehan, for example, is so upset that he thinks Zdogg should lose his medical license, but he had no problem harassing the family of an infant who had just died of meningitis, claiming it was a cover up for a vaccine injury.

This is the modern anti-vaccine movement.
This is the modern anti-vaccine movement.

Have I mentioned that some of them lie about religious and medical exemptions to avoid getting their kids vaccinated and protected? And others sell those vaccine exemptions?

“A Clallam County woman in her 20s died this year from an undetected measles infection discovered only after an autopsy, state health officials said Thursday. The case is the first confirmed measles death in the U.S. in 12 years.

The woman was likely exposed to the highly contagious infection at a local medical center during a recent outbreak in Clallam County. She was at the site at the same time as someone who later developed a rash and was determined to be contagious for measles.”

Undetected measles led to death of Clallam County woman in her 20s

Where is the outrage when someone dies from a disease that could have easily been prevented by a safe and effective vaccine?

Those of us who understand the hypocrisy of the anti-vaccine movement know exactly where it is.

More on The Moral Outrage of the Anti-Vaccine Movement

Believe It or Not, Chicken Pox Parties Are Still a Thing

Do you remember having chicken pox?

Oh boy, I sure do!

I was about six or seven years old and it was bad. Still, I’m not sure if I remember because I had such a bad case or because it made me miss Halloween that year.

It was almost certainly both, as I remember being covered in spots from head to toe.

What I don’t recall is having many visitors. Why didn’t my mom throw me a chicken pox party!

I also don’t remember going to a chicken pox party to get sick.

Believe It or Not, Chicken Pox Parties Are Still a Thing

Whether or not chicken pox parties were ever that popular, the approval of the chicken pox vaccine in 1995 should have put an end to the practice.

After all, why intentionally expose your child to a potentially life-threatening disease, when a safe and effective vaccine is readily available?

“Chickenpox (varicella) is generally a much milder illness in children than in adults, with considerably lower rates of severe disease and death. Varicella is also virtually universal in many populations, meaning that very few individuals escape infection over a lifetime. Thus, a sound logic underlies the idea of chickenpox parties, at which susceptible children can acquire the contagious causative pathogen, varicella zoster virus (VZV), from their peers. However, chickenpox is not without risks, even for children of this age; severe, complicated, and occasionally fatal varicella occur in previously healthy children, as well as the immunocompromised (who are at very considerable risk).”

Hambleton et al on Chickenpox Party or Varicella Vaccine?

Most folks understand that. They get their kids vaccinated and have helped get chicken pox under very good control, with outbreaks of chicken pox declining over 95%.

“Each year, more than 3.5 million cases of varicella, 9,000 hospitalizations, and 100 deaths are prevented by varicella vaccination in the United States”

CDC on Monitoring the Impact of Varicella Vaccination

Apparently, not everyone has gotten the message though.

Remember when CPS had to investigate the mom who was having chicken pox parties in Plano, Texas a few years ago?

“On the page, parents post where they live and ask if anyone with a child who has the chicken pox would be willing to send saliva, infected lollipops or clothing through the mail.”

CBS 5 Investigates mail order diseases

Or when anti-vaccine folks were selling and mailing lollipops contaminated with chicken pox to folks so that they could skip the trouble of finding a chicken pox party?

And then there’s that time that a family served chicken pox contaminated punch at their chicken pox party. Oh wait, that was The Simpsons

Chicken pox party - The Simpsons did it.
Chicken pox party – The Simpsons did it in the Milhouse of Sand and Fog episode in Season 17.

So what are they up to now?

Folks are still advertising chicken pox parties in anti-vaccine Facebook groups.
Folks are still advertising chicken pox parties in anti-vaccine Facebook groups.

More of the same…

Does she know that the chicken pox vaccine likely decreases your risk of getting shingles later in life?
Does she know that the chicken pox vaccine likely decreases your risk of getting shingles later in life?

Apparently, there are still plenty of folks looking for chicken pox parties to infect their kids.

Why?

It is easy to see a lot of cognitive biases at play in the decision to host or bring a child to a chicken pox party, including ambiguity aversion (prefer what they think are the known risks of getting the disease), bandwagoning (they think everyone else is doing it, because in their echo chambers of anti-vaccine propaganda, everyone might), and optimism bias, etc.

There is also a very poor perception of risks, as the risks from a natural chicken pox infection are far, far greater than any risk from the vaccine.

Don't forget to tent!!!
Don’t forget to tent and share breath!!!

In bigger news, Facebook has groups who’s mission is “finding pox,” so that parents can get their kids sick!

The mission of PX Colorado is finding pox!
The mission of PX Colorado is finding pox!

How many other PoX type groups are there on Facebook?

How many other parents are intentionally not vaccinating their kids and intentionally exposing them to chicken pox?

Do any of them quarantine or isolate their kids for 10 to 21 days after the chicken pox party, so as to not expose anyone who is too young to be vaccinated, too young to be fully vaccinated, or has a true medical exemption to getting vaccinated, including those who are immunocompromised?

Do they understand the consequences of having these pox parties?

The latest chicken pox party hostess is apparently a nurse - at least for now...
The latest chicken pox party hostess is apparently a nurse – at least for now…

Of course, an investigation from CPS, the health department, or a medical board isn’t the most serious consequence that should discourage folks from hosting or attending a chicken pox party.

Chicken pox can be a serious, even life-threatening infection. Sure, many kids just get a mild case, but others get more serious cases and have bad complications, including skin infections, encephalitis, sepsis, or stroke.

And some people do still die from chicken pox, which is supposed to be a mild, childhood illness.

“This report describes a varicella death in an unvaccinated, previously healthy adolescent aged 15 years.”

Varicella Death of an Unvaccinated, Previously Healthy Adolescent — Ohio, 2009

Fortunately, these deaths have been nearly eliminated thanks to the chicken pox vaccine.

And that’s why parents who are on a mission for “finding pox” should rethink things and switch to a mission to get their kids vaccinated and protected.

More on Chicken Pox Parties

Why Aren’t Vaccines Mentioned in the Bible?

It shouldn’t be a surprise that vaccines aren’t mentioned in the Bible.

It’s the same reason antibiotics, airplanes, and pasteurization aren’t mentioned – they weren’t invented yet.

Remember, Edward Jenner first vaccinated James Phipps with his smallpox vaccine in 1796.

Why Aren’t Vaccines Mentioned in the Bible?

But even before the smallpox vaccine was developed by Edward Jenner in 1796, we had variolation. While we have evidence of smallpox infections as early as the 2nd millennium BC, the earliest use of variolation is from the 10th to 18th Century, well after the Bible was written.

Why would vaccines be mentioned in the Bible?
Why would vaccines be mentioned in the Bible?

Still, it shouldn’t be a surprise that some anti-vaccine folks use the Bible and religion against vaccines.

“I just decided to just google what the bible says about vaccines. There’s nothing in the bible that talks about vaccines. I just want you to think about that. So if God knew in the future that he was going to create these amazing things that were going to be the best scientific advancements, like oh, my God, they’re so great, why isn’t there anything, any inkling of talk about these things called vaccinations coming into being later to save people? If that was really God’s plan and they’re so amazing, then why isn’t it in there at all? Maybe there’s a chapter where they talk about something like an injection, like this health injection, right? Like, why didn’t God talk about that if he knew that it was going to come and save the world?”

Brittney Kara

It also shouldn’t be a surprise that they do it to try and sell you stuff, like Brittney Kara’s “Awakening Reset Program.”

Or Isagenix products.

Wait, is Isagenix mentioned in the Bible?

“You can be confident that Isagenix is committed to your success by offering you the opportunity to live a healthy, clean, and lean lifestyle—and to create wealth while doing so.”

Are multi-level marketing companies?

Brittney Kara is not the first anti-vaccine person to say that God does not support vaccines and she likely won’t be the last.

“The society of the 21st century, just as many societies and cultures in the history of human civilization, use religion as an excuse for wars, discrimination, and now for vaccination refusal.”

Pelčić on Religious exception for vaccination or religious excuses for avoiding vaccination

She may be the first to say that “believing in vaccines is a mental disorder.”

Not sure where she gets that…

Still, despite the availability of religious exemptions to vaccines in most states, it is important to understand that no mainstream religions oppose vaccines.

“For its part, Catholic social teaching entails a duty to vaccinate in order to protect the vulnerable.”

Paul J. Carson on Catholic Social Teaching and the Duty to Vaccinate

In fact, most teach about a duty and moral obligation to vaccinate.

“Giving children a healthy start in life, no matter where they are born or the circumstances of their birth, is the moral obligation of every one of us. It is heartbreaking to think that three million children die each year from diseases that we can prevent.”

Nelson Mandela (2002 Vaccine Conference)

And if there is a moral obligation to get vaccinated, then what does that say about those who push propaganda that scares parents away from vaccinating and protecting their kids?

More on Vaccines and the Bible

Why Do Some Folks Wear a Mask During Flu Season?

Wearing a surgical mask is very common when people are sick and want to avoid spreading their germs to others. They are also commonly worn when people are healthy and are just afraid of getting sick.

Why Do Some Folks Wear a Mask During Flu Season?

Is that why you see some folks wearing masks during flu season?

If you are worried about your privacy, why announce something on Facebook?
If you were worried about your privacy, would you talk about it on Facebook?

Maybe, but some folks actually have to wear a mask during flu season.

Well, they have to because they decide they don’t want to get a flu vaccine, but still want to keep their job that could put others at risk if they got sick with the flu. So basically, it is unvaccinated health care personal and others who work around sick and vulnerable people who might have to wear a mask when they are at work.

Why don’t they just get vaccinated and protected against the flu?

That’s a good question…

Some other questions to consider as you think about flu vaccine mandates include:

  • Do unvaccinated health care workers pose a risk to others in the course of their jobs? Of course they do. Health care personal are at high risk to get the flu, since they are often around people who are sick with the flu, and are at higher risk to get the flu if they are unvaccinated.
  • Does wearing a mask protect anyone? – Yes, they actually do and recent studies have concluded that “surgical face masks worn by infected persons are potentially an effective means of limiting the spread of influenza.”
  • Does getting a flu shot prevent you from catching the flu? – Flu shots aren’t the most effective vaccine we have, but they are the best way to avoid catching the flu, being 10 to 60% effective since 2004.
  • Does getting a flu shot prevent you from spreading the flu to others? Yes, and several studies have shown lower rates of nosocomial cases among hospitalized patients as more health care personal get vaccinated!
  • Does getting a flu shot just cause you to have milder symptoms? The flu vaccine does has many benefits besides preventing the flu, but it is certainly not limited to just causing milder symptoms.
  • Does wearing a mask violate your HIPAA rights? No. Unless you announce it, no one knows why you are wearing a face mask. Maybe you have herpes or a cold or are just afraid of getting sick. And the Health Insurance Portability and Accountability Act only protects patients, not employees.

So why don’t all health care personal get a flu vaccine each year?

Most do.

And while some people seem to be against the idea of mandates for health care workers getting flu shots, most think it is a great idea.

“I support this requirement. I think it is a good idea. Ethically, it makes total sense. First, every doctor, nurse, and HCW knows that they are supposed to put patient interests ahead of their own interests. Whatever you think about flu shots, it is good for patients that their healthcare providers are vaccinated against the flu, particularly among patients who cannot themselves be vaccinated, such as some of the elderly, babies, people with immune diseases, and people who just received transplants or are getting cancer treatment. Vaccination does not help them. They are all immunosuppressed.”

Art Caplan on The Law: Get a Flu Shot or Wear a Mask, Healthcare Workers!

In fact, most think that there is both an ethical and a legal rationale for flu vaccine mandates for health care workers.

“Doctors and other healthcare providers have an ethical obligation to make decisions and take actions that protect patients from preventable harm. 5 Many patients are highly vulnerable to flu, so choosing not to be vaccinated is choosing to do harm—a choice that has no place in healthcare.”

Doctors choosing not to be vaccinated is choosing to do harm

It is hard to imagine that some doctors and nurses not only skip getting vaccinated, putting others at risk, but then don’t even want to wear a mask.

More on Wearing Masks During Flu Season

Vaccine Injuries vs Coincidences

Believe it or not, some folks don’t think that coincidences are real.

Not believing in coincidences is a well known trope of the anti-vaccine movement.
Not believing in coincidences is a well known trope of the anti-vaccine movement.

Is it a coincidence that these folks are the ones who are the most likely to believe that vaccines cause a lot of injuries and vaccine induced diseases?

Vaccine Injuries vs Coincidences

Thinking about vaccine side effects and coincidences is not new.

“When I undertook the study with the current vaccine strain on my own two triple-negative children and their three playmates, also triple- negatives, I thought: “I am going to do this very carefully now,” and, like Dr. Gear, I set up certain time schedules. I said: “I am going to start to give the vaccine now.” Every time I said “I am going to start to give it” and did not give it, two to three or four days later they came down with either pharyngitis, vomiting and abdominal pain, or a little fever.

I waited for approximately six weeks for those children to stop having some sort of febrile episode. I finally gave up. It so happened that after they got the vaccine they did not have any such episode.”

Albert Sabin on Recent Studies And Field Tests With A Live Attenuated Poliovirus Vaccine

When Albert Sabin was first researching his oral polio vaccine, he understood the problem. How could he really know if any signs or symptoms that occurred after he gave someone his vaccine were really caused by the vaccine, or just a coincidence?

“However, a report later to be given by Dr. Smorodintsev will deal with approximately 7,500 children who had received the vaccine and were carefully followed, as compared with another group, in similar number, who had not, for various types of illnesses which were occurring during the period.”

Albert Sabin on Recent Studies And Field Tests With A Live Attenuated Poliovirus Vaccine

The solution? They studied kids who had not gotten his vaccine.

But you don’t need an unvaccinated group to uncover coincidences.

You can just look at the background rate of a symptom or condition, and compare the periods before and after you start using a vaccine.

For instance, consider this study from Australia about using the HPV vaccine in boys, in which they made some predictions of what would happen after introducing the HPV vaccine.

Assuming an 80% vaccination rate with three doses per person — which equates to about 480 000 boys vaccinated and a total of 1 440 000 doses administered nationally per year in the first 2 years of the program — about 2.4 episodes of Guillain-Barré syndrome would be expected to occur within 6 weeks of vaccination. In addition, about 3.9 seizures and 6.5 acute allergy presentations would be expected to occur within 1 day of vaccination, including 0.3 episodes of anaphylaxis.

Clothier et al. on Human papillomavirus vaccine in boys: background rates of potential adverse events.

Wait. Are they saying that the HPV vaccine is going to cause Guillain-Barré syndrome, seizures, allergic reactions, and anaplylaxis?

Of course not. When the study was done, the kids hadn’t gotten any vaccines yet!

That was the background rate of those conditions.

They happened before the vaccine was given, and you can expect them to continue to happen after these kids start getting vaccinated – at that same rate.

What if they start happening more often after kids get vaccinated?

Then it makes it less likely to be a coincidence and more likely that the vaccine is actually causing an increase in the background rate. And vaccine safety studies look for that, which is how we know that vaccines don’t cause SIDS, transverse myelitis, multiple sclerosis, and many other conditions.

Most of you will have heard the maxim “correlation does not imply causation.” Just because two variables have a statistical relationship with each other does not mean that one is responsible for the other. For instance, ice cream sales and forest fires are correlated because both occur more often in the summer heat. But there is no causation; you don’t light a patch of the Montana brush on fire when you buy a pint of Haagan-Dazs.

Nate Silver on The Signal and the Noise

Of course, when we are talking about coincidences, we are also talking about correlation and causation.

When correlation doesn’t equal causation, then it’s probably a coincidence. Or it’s at least caused by some other factor.

And coincidences happen all of the time.

Is It a Vaccine Injury or a Coincidence?

That something could be a coincidence is not typically want parents want to hear though, especially if their child has gotten sick.

What does it mean that something happens coincidentally?

“Most sudden cardiac deaths that remain unexplained after necropsy are probably caused by primary cardiac arrhythmias.”

Sudden death in children and adolescents

Often it just means that it is unexplained. And that it is chance alone that it occurred as the same time as something else.

“In the absence of a specific etiology for ASDs, and a tendency among parents of children with a disability to feel a strong sense of guilt, it is not surprising that parents attempt to form their own explanations for the disorder in order to cope with the diagnosis.”

Mercer et al on Parental perspectives on the causes of an autism spectrum disorder in their children

Again, when folks blame vaccines, it is often because they have nothing else to blame.

“In some fraction of the American population, however, the belief in a link remains. One reason is a coincidence of timing: children are routinely vaccinated just as parents begin to observe signs of autism. Most vaccines are administered during the first years of life, which is also a period of rapid developmental changes. Many developmental conditions, including autism, don’t become apparent until a child misses a milestone or loses an early skill, a change that in some cases can’t help but be coincident with a recent vaccination.”

Emily Willingham on The Autism-Vaccine Myth

Think that it is too big of a coincidence that some infants develop spasms shortly after their four month vaccines?

Dr. William James West first described these types of infantile spasms in the 1840s!

And the “Fifth Day Fits,” seizures that began when a newborn was five days old, was described in the 1970s, well before we began giving newborns the hepatitis B vaccine.

But SIDS was only discovered after we began vaccinating kids, right?

“But, with millions upon millions of doses given each year to infants in the first 6 months of life across industrialized countries and with sudden infant death syndrome being the most common cause of infant death among infants 1 month or older, the coincidence of SIDS following DTP vaccination just by chance will be relatively frequent. When the two events occur, with SIDS following vaccination, well-meaning and intelligent people will blame the vaccine. They seek order out of randomly occurring events.”

Jacobson et al. on A taxonomy of reasoning flaws in the anti-vaccine movement

Of course not.

Cases of SIDS have been described throughout recorded history and have been well studied to prove that they are not associated with vaccines.

“Some events after immunisation are clearly caused by the vaccine (for example, a sore arm at the injection site). However, others may happen by coincidence around the time of vaccination. It can therefore be difficult to separate those which are clearly caused by a vaccine and those that were going to happen anyway… Scientific method is then used to determine if these events are a coincidence or a result of the vaccine.

Vaccine side effects and adverse reactions

It is easy to blame a vaccine when something happens and a child was recently vaccinated. That is especially true now that anti-vaccine folks turn every story of a child’s death or disability into a vaccine injury story.

“Autism was known well before MMR vaccine became available.”

Chen et al. on Vaccine adverse events: causal or coincidental?

Blaming vaccines when it is clear that vaccines aren’t the cause doesn’t help anyone though. It scares other parents away from vaccinating and protecting their kids. And it doesn’t help parents who need support caring for a sick child or help coping with the loss of a child.

What to Know About Vaccine Injuries vs Coincidences

While all possible adverse events after getting a vaccine should be reported to VAERS and your pediatrician, remember that just because something happened after getting vaccinated, it doesn’t mean that it was caused by the vaccine.

More on Vaccine Injuries vs Coincidences

Vaccines While Immunosuppressed

It seems to be a big surprise to many folks, but kids can get most vaccines when they are immunosuppressed. In fact, they sometimes get extra some extra vaccines, like Pneumovax, because the  “incidence or severity of some vaccine-preventable diseases is higher in persons with altered immunocompetence.”

They should also get all of their vaccines if they are around someone who is immunosuppressed.

Surprised?

Vaccines While Immunosuppressed

Which vaccines your kids can get while they are immunosuppressed is going to depend greatly on the reason why they are  immunosuppressed.

Are they getting chemotherapy?

Did they just get a stem cell transplant?

Were they born with a specific immunodeficiency, like X-linked agammaglobulinemia, selective IgA deficiency, severe combined immunodeficiency, or chronic granulomatous disease?

Whatever the reason, they likely won’t get a medical exemption to skip all of their vaccines.

“Killed vaccines will not cause infection in immunodeficient or any other children. The fear of increased community-acquired vaccine-preventable diseases should lead to adherence to and completion of recommended immunization schedules in the community to reinforce herd immunity, such that all vaccine-preventable diseases become exceedingly rare.”

Recommendations for live viral and bacterial vaccines in immunodeficient patients and their close contacts

In most cases, immunocompromised kids can get all inactivated vaccines. It is only live vaccines that could pose a problem. Even then, it depends on the specific immunodeficiency as to whether avoiding live vaccines is necessary.

For example, after chemotherapy and a stem cell transplant, kids can usually get live vaccines.

Your doctors can review the latest guidelines to come up with a safe vaccination plan for your child with an immune system problem. If necessary, consultation with an infectious diseases or immunology specialist can also be helpful.

Don’t overlook other causes of possible immunosuppression when getting vaccinated, like taking daily oral steroids for more than two weeks, certain biologic immune modulators, or other medications like methotrexate, azathioprine, 6-mercaptopurine.

“Limited evidence indicates that inactivated vaccines generally have the same safety profile in immunocompromised patients as in immunocompetent individuals. However, the magnitude, breadth, and persistence of the immune response to vaccination may be reduced or absent in immunocompromised persons.”

2013 IDSA Clinical Practice Guideline for Vaccination of the Immunocompromised Host

And keep in mind that just because they can and should get vaccinated, it doesn’t mean that their vaccines are going to work as well as in someone who isn’t immunocompromised.

That’s why herd immunity is so important for these kids.

Vaccines for Close Contacts of Immunocompromised People

What about people who come into contacts with kids and adults who are immunocompromised?

Can they get vaccines?

“Close contacts of patients with compromised immunity should not receive live oral poliovirus vaccine because they might shed the virus and infect a patient with compromised immunity. Close contacts can receive other standard vaccines because viral shedding is unlikely and these pose little risk of infection to a subject with compromised immunity.”

Recommendations for live viral and bacterial vaccines in immunodeficient patients and their close contacts

Yes, close contacts can get vaccinated, especially since we don’t use the oral polio vaccine in the United States anymore.

There are some exceptions for the smallpox vaccine, which few people get, and Flumist, but only in very specific situations, including a recent hematopoietic stem cell transplant.

Johns Hopkins Medicine, which includes the Johns Hopkins University School of Medicine and the The Johns Hopkins Hospital and Health System went out of their way to correct this anti-vaccine misinformation.
Johns Hopkins Medicine, which includes the Johns Hopkins University School of Medicine and the The Johns Hopkins Hospital and Health System went out of their way to correct this anti-vaccine misinformation.

Worried about shedding?

You should be worried about getting a vaccine-preventable disease and giving it to those around you with immune system problems. That’s the real risk!

This is the modern anti-vaccine movement - taking an immoral stand against vaccines and putting sick kids at risk for life-threatening disease.
This is the modern anti-vaccine movement – scaring parents and taking an immoral stand against vaccines and putting sick kids at risk for life-threatening disease.

And no, you are not being selfish to expect those around you to get vaccinated.

Vaccines are safe and necessary – for all of us.

More on Vaccines While Immunosuppressed

The New Medical Kidnapping Panic

Adults have the right, both morally and legally, to make decisions about their medical care.

What about kids?

Until they become adults, or are close to becoming adults, their parents or legal guardians have the right to make those decisions for them.

Challenging Parental Medical Decisions

There are situations in which a parent’s rights to make medical decisions for their kids can be contested. In general, you can’t make decisions that will obviously harm or put your child at extra risk.

“In most countries, parents have a legal right to make treatment decisions on behalf of their young children. Such rights are normally rebuttable: they can be set aside by courts where parents’ decisions pose a significant risk to the life or well-being of the child.”

Tim Dare on Parental rights and medical decisions

For example, if a parent continues to refuse antibiotic therapy and hospitalization for a life-threatening infection, like meningitis, then the child’s doctor will likely contact child protection services and get authorization to treat the child anyway.

What if you refuse a meningitis vaccine? Although a bad idea that puts your child at risk to get a vaccine-preventable disease, unless your child is in the middle of an epidemic, it is very unlikely that anyone would call child protective services on you. In the situations in which courts have gotten involved in getting kids vaccinated and protected, it was because an unvaccinated child was in foster care for another reason, two parents disagreed about vaccines, or rarely, there was an epidemic and the parents refused to either get vaccinated or stay in quarantine.

“The American Academy of Pediatrics (AAP) believes that all children deserve effective medical treatment that is likely to prevent substantial harm or suffering or death.”

AAP on Religious Objections to Medical Care

Why do these cases come up, cases which certain folks call medical kidnapping?

“Parents are free to become martyrs themselves. But it does not follow that they are free, in identical circumstances, to make martyrs of their children before they have reached the age of full and legal discretion when they can make that choice for themselves.”

Prince v. Massachusetts

It may be that the parents:

  • refused treatment because of religious objections
  • thought that the risks and side effects of the treatment were worse than their child having the disease
  • want to pursue alternative treatments for cancer or other life-threatening conditions, instead of chemotherapy and other standard therapies, especially in situations in which standard therapy has a good chance of success
  • don’t believe the diagnosis is real and are pursuing other treatments that are harming the child
  • want to continue treatments that doctors think have become futile
  • have lost custody of their kids for reasons that have nothing to do with the child’s medical issues and so a legal guardian, which might be the state, is making those decisions now

Fortunately, these situations are not very common, no matter how much some folks try to scare parents that the state is coming to kidnap kids away and force them to get vaccinated or get other treatments. Yes, courts do sometimes have to step in and do what they think is right for a child over a parent’s wishes, but there is no epidemic of doctors or child protective services kidnapping kids.

The New Medical Kidnapping Panic

Although you can sometimes challenge the decisions a parent makes when their kids are sick, and in some cases, ultimately treat their kids in ways that those parents might not agree with, again, you can’t simply take or kidnap a child and do whatever you like.

“Physicians have both a moral obligation and a legal responsibility to question and, if necessary, to contest both the surrogate’s and the patient’s medical decisions if they put the patient at significant risk of serious harm.”

AAP on Informed Consent in Decision-Making in Pediatric Practice

Except in emergencies, overriding a parent’s wishes is usually a long process, involving second opinions, an ethics panel or team, child protective services, and the courts. In most cases, a judge, sometimes after several appeals, decides what will ultimately be done, looking at all of the evidence from both sides.

That the process takes time is evident when you look at the timeline from the legal battle for Alfie Evans. Although most people likely think everything began when the tragic story finally made headlines, a few weeks before his death, it was at least four months earlier that the hospital began “liaising directly with the family after disagreements over his treatment.” And it was four months before that, when Alfie was 13-months-old, that the hospital had first started talking about withdrawing life-support treatment.

It took a hearing before judge in the family division of the high court, three court of appeal judges, a review by supreme court justices, and a review by the judges at the European court of human rights for Alder Hey Children’s hospital to withdraw Alfie’s life-support treatment.

That the process took so much time was missed by those who push the idea of medical kidnapping. These same folks, in the case of Alfie Evans, are also pushing claims of vaccine injury, a plot to illegally harvest organs, a plot to cover up a misdiagnosis and medical neglect by the hospital, a plot to kill him with a lethal injection, and that others had a plan to help him get better.

Many of the same issues were raised in the case of Charlie Gard, an infant who was taken off life support at another UK hospital against his parent’s wishes.

Other cases have included:

What about when doctors disagree on a diagnosis and plan of care? Can parents simply pick which one they prefer?

In most cases you can.

Doctors have different styles and there are often different treatment plans for the same condition. The trouble typically comes when a parent chooses an alternative type treatment that has been shown to not work or is known to be harmful. Or provides treatments a child doesn’t even need.

Tragically, we often don’t hear about these cases until it is too late and the child dies before doctors and courts ever have a chance to intervene. When folks talk about medical kidnapping, they don’t seem to mention kids like:

  • Ezekiel Stephan – died at 19-months because his parents treated his bacterial meningitis with natural remedies, including “water with maple syrup, juice with frozen berries and finally a mixture of apple cider vinegar, horseradish root, hot peppers, mashed onion, garlic and ginger root”
  • Madeline Kara Neumann – the 11-year-old who died because her parents relied on prayer instead of modern medicine to treat her diabetes
  • Ryan Lovett – the 7-year-old who died with a Strep skin infection that his mother had been treating with “holistic remedies,” allowing it to progress to pneumonia, meningitis, and multiple organ failure
  • Louise Le Moaligou – an 11-month-old who died because her parents treated her pneumonia with “cabbage and clay compressions”
  • Gloria Thomas – died at 9-months because her parents pursued homeopathic remedies for her severe eczema, even as she developed malnutrition and sepsis.
  • Isabella Denley – a 13-month-old with severe seizures who died after her parents opted for alternative treatments over anti-convulsant medications, including a “vibrational kinesiologist, a cranial osteopath and a psychic who told them Isabella was suffering from a past-life trauma.”
  • Cameron Ayres – a 6-month-old who died with a likely inherited metabolic disorder that was treated by a homeopath with vinegar and honey
  • Eliza Jane Scovill – died of AIDS-related pneumonia at age 3-years. Eliza Jane was the daughter of Christine Maggiore, an HIV denialist who advised HIV positive moms to not take preventive antiviral drugs during their pregnancy, the one thing that would have kept Eliza Jane from getting HIV in the first place.
  • Alex Radita – the 15-year-old with diabetes who died because his parents wouldn’t treat him with insulin
  • Aidan Fenton – the 6-year-old with diabetes who died after undergoing slapping therapy by a Chinese healer, therapy that also involved fasting for “days on end.”
  • Garnett Spears – a 5-year-old who supposedly had multiple medical problems, but instead was poisoned by his mother, who was adding a lot of extra salt to his g-tube feeding bags
  • Gypsy Rose Blanchard – after a lifetime of being told she was “sick,” including having leukemia, muscular dystrophy, and seizures, Gypsy and her boyfriend stabbed her mother to death
  • the 6-week-old in South Texas with late onset vitamin K dependent bleeding who never received vitamin K prophylaxis at birth and died after developing brain bleeding and seizures
  • the 3-week-old in Indiana with late onset vitamin K dependent bleeding who was born in a birthing center and whose “parents signed a waiver to forego vaccination and prophylactic therapies,” and required an emergency craniotomy to evacuate braining bleeding, prolonged intubation, and difficult to control seizures
  • Tom, Roger, and Chrissy Williamson – the three children were taken to over 500 doctor appointments, put on medications for epilepsy, Crohn’s disease, Tourette’s syndrome, etc, and had unnecessary surgeries because their mother made doctors think they were sick
  • Amina Krouser – a 14-year-old who died after a neglected sore throat led to a life-threatening brain infection, for which her mother refused emergency surgery.
  • Christopher Bowen – an 8-year-old who had 13 major surgeries and 323 visits to the hospital because his mother fooled doctors into thinking he had a rare genetic disorder
  • the Oregon mother who’s three kids had unnecessary surgeries and were put on high dose “cocktails” of medicine, including one that she was trying to put in hospice

Trouble can also come when a child gets diagnosed or re-diagnosed with a more controversial condition. That seems to be what happened with Justina Pelletier, a teen who was kept and treated at Boston Children’s Hospital against her parent’s wishes. The doctors there doubted her original diagnosis, that she had a mitochondrial disorder.

“Unfortunately, mitochondrial genetic disorders can be difficult to diagnose, and many affected people may never receive a specific diagnosis. They are often suspected in people who have a condition that effects multiple, unrelated systems of the body.”

NIH on Mitochondrial genetic disorders

Similar to mito disorders, there are other conditions that are often difficult to diagnose, including Ehlers-Danlos, Postural Orthostatic Tachycardia Syndrome (POTS), and Pediatric Autoimmune Neuro-Psychiatric Disorder Associated with Streptococcus (PANDAS).

Getting diagnosed or treated with these conditions wouldn’t usually be an issue, except that some alternative, holistic, and integrative health care providers take advantage of them. They might even stretch the disease definitions to make them fit almost anyone with vague symptoms and use treatments that many others would consider harmful, or at least unnecessary. It isn’t hard to see that even when a child gets a genuine diagnosis for one of these conditions, it might get questioned because they might have seen others that turned out to be misdiagnosed.

To be clear, these are all very real conditions that are almost certainly under-diagnosed because many doctors still don’t understand them. If you suspect that your child has one of these conditions, or any other rare condition, try and seek out a true expert to confirm the diagnosis. Does everyone who comes to the clinic get a diagnosis and list of supplements to buy? Then that likely isn’t the “expert” you want your kid to see.

Did you know that many of the DAN (Defeat Autism Now) doctors that once pushed biomed treatments to “cure” autism are now some of the same doctors continuing to push autism biomed treatments, but are now also diagnosing and treating kids with mito disorders.

And remember when all of those kids in LeRoy, New York developed tics for no good reason? One doctor, who actually runs a PANDAS institute, diagnosed many in the cluster with PANDAS.

It shouldn’t be surprising that many of these DAN doctors, including many who are not actually medical doctors, are also in the PANDAS Physicians Network Practitioner Directory.

Are they all cutting edge doctors helping to diagnose and cure kids when no one else can? Or as in the case of their autism biomed treatments, are they taking advantage of people looking for hope wherever they can?

Complicating matters further, some providers also diagnose kids with conditions like adrenal fatigue and chronic Lyme disease that most doctors don’t even think exist!

“Government should not get involved when doctors disagree about a diagnosis or course of treatment, the doctors have full knowledge of the child’s medical record, and a parent chooses one doctor’s opinion over another’s.”

Maxine Eichner on The New Child Abuse Panic

Government should not have to get involved when doctors disagree, but quack doctors shouldn’t be out there taking advantage of people either, especially to the point that it is going to harm a child. When they do, someone needs to step in and protect those kids.

And when you hear a story about a “medical kidnapping,” remember that you typically just get one side of the story. Because of privacy laws, the doctor, hospital, and CPS likely isn’t going to release any details that will help you understand why they felt the child was at risk.

Even more importantly,  when folks tell you that medical child abuse isn’t real and doesn’t happen, tell them about about the victims named above.

What to Know About Challenging Parental Medical Decisions

Challenging and taking away a parent’s right to make medical decisions for their child is something that is typically only done in extreme situations.

More on Challenging Parental Medical Decisions